Jan 2nd marked my 4 yr anniversary of acquiring RSD/CRPS. I truly have come so far physically, emotionally, spiritually and mentally. This illness has tested me on all kinds of levels! My New Year's resolution is to place more time and effort on my blog. I cannot believe it has already been 6 mths since my last post.
Update: I moved in with my boyfriend and bought a new house. We started moving much too quickly and so we have scaled it back quite a bit.
I don't know why I didn't mention this last year, but Feb 2010 I was diagnosed with Dilated Cardiomyopathy and luckily a mild case. It may prevent me from Ketamine. I don't know as of yet. On friday, I am seeing Dr. Bhatia to consult about Ketamine so that is exciting. This is the Dr doing it in Canada and so I guess if they won't treat me then OHIP will have to pay for treatment in the States.
I read about a product someone else w RSD/CRPS uses to control the pain and so I purchased it to see if it would help me. It is called the Fenix Trigger Point Board. I have had it only for a few days and am amazed at the difference of pain levels that I am experiencing!! I think it is truly a godsend!!! About 5 days ago I was crying in bed from pain and now I am able to function. Amazing! Comes w a money back guarantee so I definitely recommend it. Google "fenix trigger point" to purchase.
The Dr who created it had a Daughter w Fibromyalgia and also himself suffered from Chronic Pain. I accidentally missed my lidocaine infusion just before Christmas and so I was really suffering. I go every 3 weeks. This time it has already been 6 weeks and I do not have an appointment for another week!!!
I also find Neuragen works well. Stinks to high heavens, but helps. It is "homeopathic" liquid or gel you apply topically and I buy at Shoppers Drug Mart in the diabetes section. Smells awful, but worth a try for relief.
I also got a fabulous gift at Christmas. From the maker of Sunbeam, a heating pad specificallu for your neck that you kind of wear like a necklace. Amazing relief for my neck and shoulder pain.
That is it for now! Remember, please never hesitate to email me or to leave me a comment. We are in this together.
Happy New Year!
Natalie
Update: I moved in with my boyfriend and bought a new house. We started moving much too quickly and so we have scaled it back quite a bit.
I don't know why I didn't mention this last year, but Feb 2010 I was diagnosed with Dilated Cardiomyopathy and luckily a mild case. It may prevent me from Ketamine. I don't know as of yet. On friday, I am seeing Dr. Bhatia to consult about Ketamine so that is exciting. This is the Dr doing it in Canada and so I guess if they won't treat me then OHIP will have to pay for treatment in the States.
I read about a product someone else w RSD/CRPS uses to control the pain and so I purchased it to see if it would help me. It is called the Fenix Trigger Point Board. I have had it only for a few days and am amazed at the difference of pain levels that I am experiencing!! I think it is truly a godsend!!! About 5 days ago I was crying in bed from pain and now I am able to function. Amazing! Comes w a money back guarantee so I definitely recommend it. Google "fenix trigger point" to purchase.
The Dr who created it had a Daughter w Fibromyalgia and also himself suffered from Chronic Pain. I accidentally missed my lidocaine infusion just before Christmas and so I was really suffering. I go every 3 weeks. This time it has already been 6 weeks and I do not have an appointment for another week!!!
I also find Neuragen works well. Stinks to high heavens, but helps. It is "homeopathic" liquid or gel you apply topically and I buy at Shoppers Drug Mart in the diabetes section. Smells awful, but worth a try for relief.
I also got a fabulous gift at Christmas. From the maker of Sunbeam, a heating pad specificallu for your neck that you kind of wear like a necklace. Amazing relief for my neck and shoulder pain.
That is it for now! Remember, please never hesitate to email me or to leave me a comment. We are in this together.
Happy New Year!
Natalie
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