Living with RSD/CRPS

Ugh!!!! 3rd Bout with Vertigo since 2002.... It's back again. Survived the holidays with it, but would have enjoyed them without.... *** sigh*** 10 days in. One time it lasted a week or two I think. Last time about 6 weeks. I'm so hoping this is almost gone. Today is the worst day so far:S although everyday it changes..... Anyone else experienced Vertigo who has RSD/CRPS??? Just curious....

It is ALMOST that time of year again. Time for holidays, family, warmth, fun, hot chocolate, quality time and gifts! I am excited for Christmas this year! So my pain levels are a lot better and a lot more tolerable this year. I had a few sessions with Michelle Vickers who helped me do a soul connection that has changed my pain levels for the positive. I rescued a dog. He is a Husky/German Shepherd and adorable. Today I took him on a run through the woods near our home. He gets really, really hyper if he doesn't get his exercise. A cross between both being a puppy and his breed. He is bringing a lot of joy to our lives. We have a "Real" free this year as said puppy was trying to eat all of the mini lightbulbs on the fake tree. The aroma of the real tree is amazing actually. We had snow for awhile, but none recently.... All has melted away. The cold on my lungs was crazy today though. Sharp and painful. The mental benefits awesome! Wishing you and yours a very happy holid...

I have been doing something different since the beginning of July 2012. I was not looking for a spiritual answer. I was looking for some pain relief and honestly at this point, just about ready to try almost anything. An old acquaintance, Facebook and curiosity all cumulated into an amazing adventure. After one session, I was on about half the meds and living life a little bit fuller and even missed my coveted Lidocaine Infusion. I simply forgot..... I am in no way, shape or form associated with or benefiting from this recommendation. Call or Email Michelle. If its anything like my experience, you can thank me later. www.MichelleVickers.com

So I can't feel most of the pain in my legs and feet anymore. Thank god. After an epidural, in 2008 I lost a lot of feeling. Clearly there is still a problem.....

My favourite musical since I was 17 was put on at the Panasonic Theatre by Theatre Sheridan! My almamater!!! Jonathan Larson's "RENT." It is an amazing musical about life, love, friendships and living in the present moment and forgetting regret. It was amazing! This was the track I was on before getting RSD/CRPS! To be a professional performer. I was even at a prestigious school practically guaranteeing me a career in my chosen field. Then RSD.... I am now inspired yet again to make a run at some kind of performing career. It is and has always been what I should be doing. Today I make the step forward to lose weight, get pain under control and try to get a talent agent within the year. I am on my way up, I don't know how, but I WILL be famous an have a career doing what I love!!!!

Just yesterday I learned that two people with RSD/CRPS decided to end their own life. This illness is something that is very hard to handle and often leaves its victims feeling very, very alone and desperate. Please learn all you can about this illness and please share and make others aware to help people get the understanding and support needed. I myself am sitting in the waiting room of my Pain Management Centre waiting my turn to get my lidocaine infusion. I got absolutely no sleep at all:((

My Cardiologist called me first thing yesterday morning to let me know that my blood values for heart failure have not risen. Nevertheless, this has definitely been a wake up call for me. The meds have caused me to gain weight and I have not been as careful with my diet for heart healthy foods. I also have not been doing enough cardio. Even 5-10 mins each day would help I think..... I am still going for the Muga scan next week to get a true Ejection Fraction Output. Now we are not expecting as low as 44% thank god. I am curious to find out asap now though. I started wondering if I might only have 5 or 10 years to live which kind of freaked me straight out! Wow.....

Jan 2nd marked my 4 yr anniversary of acquiring RSD/CRPS. I truly have come so far physically, emotionally, spiritually and mentally. This illness has tested me on all kinds of levels! My New Year's resolution is to place more time and effort on my blog. I cannot believe it has already been 6 mths since my last post. Update: I moved in with my boyfriend and bought a new house. We started moving much too quickly and so we have scaled it back quite a bit. I don't know why I didn't mention this last year, but Feb 2010 I was diagnosed with Dilated Cardiomyopathy and luckily a mild case. It may prevent me from Ketamine. I don't know as of yet. On friday, I am seeing Dr. Bhatia to consult about Ketamine so that is exciting. This is the Dr doing it in Canada and so I guess if they won't treat me then OHIP will have to pay for treatment in the States. I read about a product someone else w RSD/CRPS uses to control the pain and so I purchased it to see if it would help me....